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Hi, my name is Kyle. I don't
know if I'm really like that, I just know that I have lots of
friends and I like to have fun everyday. I like to play football
in our backyard with my Daddy. My Mom has been teaching me to
hit a ball. I can hit it hard. My Mom gets real excited when I
hit it far. My Dad taught me to play basketball. I can even slam
it on my goal. I have a little sister. We like to play hide and
seek. She's getting pretty good at finding me. |
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One day I was having a hard time
walking, which is strange, because I walk really well, and can run even
better. My Mom noticed, because moms do that. My parents knew something
was happening but I didn't. Mom and Dad didn't feel good about the way I
was walking and acting so they took me to the hospital and they said I
had a seizure. |
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The doctors took some pictures of my head and found I had
a tumor on my brain. I had to have surgery so that the doctors could
take it out. My Mom and Dad were real worried, but they tried to be
strong for me. I wasn't scared, well, maybe a little. My family and
friends, and people from my church came to the hospital with me. |
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After my surgery the doctors told us
that the tumor was gone and I would get better. I had to go to a place
for radiation. The nurses told my parents that most kids cry when they
go there, but I didn't. I just went right in and let them help me get
better. Sometimes it hurt so bad that I couldn't help it, and I would
cry. My parents told me it was OK to cry, that the radiation was going
to help me. |
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Finally the day came when the radiation
was done. The doctors took more pictures and found out the tumor had
grown back and it was bigger. The doctors said it might be a
glioblastoma (GBM) tumor and that made my parents sad. I had another
surgery, and the doctors tried to get the entire tumor out, but there is
still some there. |
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Now, I have to do chemotherapy. I'm having problems
walking, but it's getting better every day. The doctors tell my Mommy
& Daddy the chemotherapy will shrink the tumor and I will get
better. |
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We want
to thank everyone for all their help and love and prayers! Be sure to
read my journal to see the latest updates on my progress! And don't
forget to sign my guestbook so I'll know you visited my website! |
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Update August 2006
Hi! This is Kyle again! You read in my
story above that I had a brain tumor when I was 3 years old and
now I am almost 5 years old! I have been through a lot more
things than most big people. I have had a lot of changes in my
life in the last 2 years. This is where my story left off:
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The chemotherapy the
doctors gave me didn't work and I had the Gamma Knife
procedure (radiation). My mama and daddy decided the best
place for treatment was Denver Colorado. |
Kyle when we first
arrived in Denver |
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Kyle & Lauren playing
at apartment in Denver |
Kyle being cool |
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Kyle holding Lauren when
he was sick |
We moved there for 5
months and I went through 3 rounds of traditional
chemotherapy and 5 rounds of high dose chemo with stem
cell rescue. Denver Children's hospital was very nice and
I made lots of new friends. My favorite nurse was Mike. We
played a lot and I still talk about him often. |
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Kyle
playing dress up cowboy at Buffalo Bill Museum, Lookout
Mountain Colorado |
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Kyle meeting Ricky
Carmichael in Colorado (July 2006) |
Kyle & Daddy trying
out motorcycles |
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When my chemotherapy
was over we went back home to Del City Oklahoma. I was so
glad to be home and my family and friends had a welcome
home party for me. Not too long after we came home from
Denver I started having problems with my muscles and I was
falling a lot. I was really scared and so were Mama and
Daddy. |
Kyle April 2, 2006 |
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Kyle &
"Sissy" |
Dr. Forman, my neuro-oncologist
from Denver, said it was "radiation necrosis". I
don't know what those words mean except that my body
doesn't work like it used to before the brain tumor. The
good news about that is Dr. Foreman says my brain tumor
will probably stay away forever because I have radiation
necrosis. My tumor has been gone for about 1 1/2 years (in
remission). My family and everybody at my church says that
I am a "miracle child" from God. Maybe, God
healed me so I could stay here on earth and tell everybody
my story. |
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The other good things
are that I work hard everyday with my therapist and at
home to get stronger. My mama and daddy are the best and I
tell them all the time how much I love them and my little
sissy (Lauren). My whole family works really hard at
making everything as normal as possible for me since I
can't walk, sit by myself or even use my hands very good. |
Kyle & Lauren (Easter
2006)
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Kyle at Nanny &
Poppy's house May 2006 |
I have a lot of stuff
that helps me everyday like "my chair", "my
walker", "my motorchair", "my potty
seat", "my booster seat" and "my
swing". The down side of this is that I get really
frustrated that my body won't work and I can remember what
I used to be able to do. My muscles get really stiff
sometimes and it is hard for me to relax. I also have
problems sleeping, so I have to take sleeping medicine and
it makes me tired during the day. There are good days and
bad days. We try to make the best of everyday! |
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Keep up with my journal for updates and don't
forget to sign my guest book. My mama reads the guest book to me
and I like to hear what everybody has to say to me. Maybe, some
day I will be able to read it by myself.
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http://www3.caringbridge.org/ok/xander/
- Kyle's friend Xander Moore |
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